Tuesday, July 14, 2009

Home Sweet Home

All of you have been so generous. Tommy and I want to thank you from the bottom of our hearts for everything. I feel very behind in sending notes of thanks out to all of you. However, please know that we appreciate all that you've done. We are getting back on track and hope to see all of you soon!

I woke up this morning and realized my brain surgery was exactly three months ago (Tuesday, April 14th). It has been quite a journey - one with many miracles and beautiful nuances along the way! Amazing gifts of humanity were bestowed on us through all of your love, prayers, food and support during such an unexpected and intense diagnosis. It's because of all of you that this was doable and I have thrived. Tommy and I truly cannot thank you enough for sticking with us through all of this!

Since returning home June 5th I have been resting and getting my energy back. I had no idea how tired radiation could make you! Coming home has been wonderful, don't get me wrong; however, it has also been a challenge trying to keep up with the normal pace of a healthy family household. I know it will come with time. All in all, it is going excellent. I had my follow up MRI and all was clear! (The brain tumor was completely resected - still a miracle that I never want to forget!). After a month off, I also started back on chemo (Temodar); only this time I just have to take it one week a month for 6 months or so. I am being closely monitored by a local Medical Oncologist with weekly lab work to insure my body is tolerating the monthly chemo. I am extremely blessed to be doing so well. Yes, I am mostly bald, however, in the spectrum of issues that could have happened, this is nothing. Each morning I wake up and point and flex my left foot and say "Thank you!" to God for Dr. Benham Badie! I am so grateful to be able to walk! Independence Day this year had a whole new meaning to me.

The picture to the left is of some flowers that had fallen off of a tree by our cottage at City of Hope...obviously they had some help from Tommy getting arranged into the word pattern you see spelling out HOPE. It was a beautiful message for me to see on my last day of radiation treatment out there. Tommy also mentioned that he hoped the teenage boy next door to us would see it on the way to his treatment that day. Its really a message for all of us to hold on to. No matter what is going on in your life - always keep hope alive and trust in God. There is always hope!
Sincerely, Bridget

Thursday, June 18, 2009

Welcome Home Mom


Hey everybody! This is Adelyn and Gretchen speaking. We are sooo happy our mom is finally home. Mom and Dad got home at midnight on June 5 while I (Adelyn) was just getting home from my eighth grade trip to St. Louis, MO. Even the pets were happy to see mom return. My mom came home to a freshly painted bedroom, new curtains, bedspread, newly planted flowers, a garden, and a clean barn:) Thanks dad, for all your hard work and for getting everything ready for mom's homecoming.
My Mom is really happy to be home, and is enjoying the peace and quiet that is nothing like the bustling California. She's been resting a lot because she has been really tired. Yesterday she met with her new local medical oncologist, who she will be following up with monthly.
Now we're all just adjusting to having our mom tell us what to do again and getting everything back into order. We are all just so thankful she's home and now we are off to soccer and band practices. Talk to you soon!

Friday, June 5, 2009

It is accomplished!

Yesterday, Bridget received the large, hand- crafted, and very inspirational sign from Sherri (her elementary school teacher friend) that you see here. It definitely gave her added strength to get to that last appointment today! Thank you Sherri and helpers! Your giving really made a difference! We laid it right outside the door for her to see on the way to the last radiation treatment this morning.

Let me restate that important point...Bridget finished her last radiation treatment today at 9am! She is done with that chapter!!! Whew Yeah!!!!! Way to go Bridget!!! She even received a medal from her radiation team after this last treatment. Dr. Radany commented on what a fighter she is and everyone was happy and sad at the same time to be leaving each others' company...lots of hugs and tears. Bridget also took her last dose of chemo for a while (she gets a month off before having to take that again, but its oral tablets and generally well tolerated)!

We are packed up and, after a few quick errands, are ready to go to the airport. Bridget will be home tonight!!!

After arriving this past Sunday to be with Bridget for her last week of treatments out here, I have to admit that it was a rough week for her at times. However, as always she managed to tough it out, get through the low points of each day, and somehow manage to get herself going to go out for dinner or just get out and about for a time. Bridget gives all the credit to Divine intervention and your constant prayers and I do too. At the same time I am also amazed at the determination and grace of my beautiful, strong, and inspiring wife. Helping to get through the week, was a visit from Bridget's cousin Peter McCormick who was out on business. We took in dinner at Mastro's where a talented musician friend of ours, Rob Gonzalez, plays a few nights a week. It was a wonderful time with great music and Peter has a natural ability to make everyone smile and laugh. Local resident and my cousin, Quinn Hanchette, had dinner with us on our last official night in California. It was so great to have him so close during all this time out here.

We have been keenly aware that Bridget's time out here corresponded with block of time in the church calendar from Holy Week to Pentecost. The walk of Christ and inspiration of the the Holy Spirit has really been a gift to experience in a new way during this time for Bridget and our family. The masses with our wonderful priest, Fr. Mark, at home with copies of sermons forwarded on to Bridget...the wonderful masses themselves truly celebrated with gusto by our fantastic congregation have contributed greatly to keeping us going as a family.

I couldn't help myself and had to post a few more pictures of just some of the additional amazing blossoms that popped since my last stay here at City of Hope. I didn't have the chance to to ask someone what they are, but the purple flowering trees are in full bloom all over out here right now. As the blooms fall, they shower the ground in a carpet of purple. Everything blooms with flowers out here, even trees that look like maples get those pink little star fish shaped blossoms you see in the picture below. Remember to slow down...smell and see the flowers in life, when you do you'll appreciate that this is life as it meant to be lived, not the hyper-paced life many of us have created for ourselves for some crazy reason. Slow down, breath in life. Pace yourself, don't race...instead enjoy the journey and gift of life. You can't force a flower to bloom when you want it to. Take time to observe it as it unfolds.


We have been told that the drain on energy Bridget has been experiencing will last for a few weeks, so please understand if we don't pick up the phone or are hermits for a while as we settle in with Bridget at home. Note that Bridget has been living and breathing medical care for weeks on end. She has shared with me that when she gets home she wants to talk about "normal things"...not cancer, not medical treatments in particular. She is ready to just get back to living her "normal life" again. Your help with this will be most appreciated.

Thank you so very much to each and every one of you for your cards, prayers, time devoted to Bridget, advice, medical care, Denise cleaning the cottage, meals, giving rides to our kids, letting them stay at your houses, offers of help, taking pictures of our kids to send to Bridget, being there during surgeries, encouraging words, hugs, pats on the back, sharing pet cats for pet therapy (Thurman rocks!), handling the extra responsibilities at work, attention to our kids at school, and so much more. Words cannot describe our deep sense of love and appreciation.

Please continue to keep Bridget in your prayers each and every day.

Love, Tom and Bridget.

Tuesday, June 2, 2009

Malibu to the Rescue!
















As I count down the days before I will be departing City of Hope I was lucky enough to be visited by my neice (and Goddaughter) Jacque Schaefer. Jacque just finished her first year at UW-Madison and plans to pursue something medically related for her career. I think her visit here helped her see what a few options in healthcare could be and possibly helped her narrow her choices. It is so important for all of us to discuss with the younger generation what their passions and dreams are - for this will effect the future of our world!

I wish I could explain the surreal world in which I have been living! The California weather is great and there are beautiful blossoms everywhere, yet there are times when I've never felt more sad. I've become so acutely aware of each person I come in contact with - what they may be struggling with, or how they are feeling. I guess it's just a compassion that you develop when you've been knocked around a bit! I always thought I had it - the ability to connect and have compassion for others - but it has been intensified dramatically. Each human is doing the best THEY can do. So, don't get frustrated with slow drivers, slow talkers, or teenagers that don't know what direction they're going. Instead, ask them how you can help them. It's truly refreshing! YOU have the ability to make a difference in this world!

Jacque and I found ourselves at a very authentic Greek restaurant one day while visiting Malibu Beach area for some fresh ocean air. We sat out on a patio and enjoyed the atmosphere. It's so nice when friends and family have arrived here and distracted me from all of this. As you can probably see from this photo, I'm feeling pretty tired in these last few weeks of radiation. Of course, this is to be expected. I have continued to get great lab results and through your prayers and support I have found the strength to get myself to walk over to the clinic daily for these treatments. I am completely dependant on God's intercession and truly could not do this without all of you! Thank you to each and everyone of you for the prayers, cards and for those of you who have helped support our kids while I've been gone. All of this has made my time away tolerable.

Gratefully yours,

Bridget

Friday, May 29, 2009

Memorial Day Weekend!







































It feels like it's been a long journey out here in "sunny California"! I'm ready to face the chilly spring weather of Wisconsin! I was so fortunate that my sister, Peggy, did a return trip out here to visit over the holiday weekend along with our daughter, Gretchen (age 11). This was really refreshing to see them! Gretchen skipping around looking for geckos, hopping on the "musical tiles" in the rose garden and we explored the San Gabriel Mountains (Memorial Day)! Looking for a picnic spot was a little challenging, however, we really enjoyed the change in scenery. Peggy was the brave reliable driver going up the mountain road...we made it to two dams which were beautiful, however, the surrounding landscape was very desert-like. Not really a place where you would spread out your picnic blanket. So we backed up the Tahoe and enjoyed our picnic from there. We also found a few friends along the way - see Peggy with Mark Twain in downtown Monrovia, CA!







All in all things are going well. I'm just marching on through the prescribed treatments...knowing that God is protecting me and that I will get through this one day at a time. Psalm 23 comes to mind frequently this week. As much incredible support as all of you have provided, there are still those lonely moments when you need to lean on your faith as your guide. It is very comforting to know that I'm never alone - my prayers for a miracle have been answered! I'm walking a thin line between resting and strengthening. It's really amazing to me how resilient the human body is. Truly a miraculous work of God.

As I walk along the City of Hope "campus" buildings everyday - most of them have signs that read "Research" of some sort going on. I'm so very curious and would like to learn more while I'm here, however, I guess now that I only have one week left, it's not quite enough time for an internship! I am so interested about what studies are going on and what he future holds for cancer treatments. However, for now, I'm back to focusing on healing and strengthening so I can return to my real life in Wisconsin June 5th (this is also my final day of radiation)! Many have said that the radiation is cumulative and that I will be tired for a few weeks after this. I'm okay with that - just imagine, I could have been paralyzed! I never want to forget the miracle that occurred. So many miracles in such a short span of time.
I can't tell you how much all of your support and prayers have made a difference! Thank you from the bottom of my heart!

Sincerely, Bridget

Friday, May 22, 2009

Counting Down!

Hello my Friends! It was another week of getting through Dr. appointments, labs, daily radiation, etc...but I have to say that I am starting to see the light at the end of the tunnel. My sister, Susie stayed with me last week and she did a great job at keeping me positive and realizing that I only have less than 10 more radiation treatments...so we're counting down! I think Susie was hoping to see more movie stars - that was the only disappointment. However, we did have a surprise visit from our brother, Stuart! How crazy - he had a meeting in Las Vegas and decided to drive over, take us out to dinner and then drive back for his meeting! The photo shows us in the Rose Garden with a "musical tile chime". Very unique and challenging.



Susie and I tried to take advantage of any moment we could when I had a decent energy level. We explored the neighboring cities and found the quaint old downtown areas with unique shops and restaurants. We were also lucky enough to visit the famous Huntington Library Garden. Very lush and beautiful beyond description!
















In contrast, I've had my moments of wondering if I was human anymore - truly a weird sensation when you have a feeling that your body is an object in an experiment rather than just being yourself. I think the first wave of that feeling came over me when I opened the medicine cabinet and wondered "who are those for"? I've always been someone who just took an occasional multivitamin! I just keep taking the medicine as prescribed (thank God I have a pill organizer to keep track of this stuff!) Reality hits when you start losing your hair and then you have each set of doctors/nurses gazing at your incision giving advice on how to heal. It's all somewhat surreal. Even so, I'm happy to part of the trusted "experiment" here at City of Hope. My experience has been filled with amazingly gifted and compassionate physicians and other healthcare providers. I really can't emphasize how I truly know I came to the right place for my treatment!

I think Jaclyn Carey and Susie had the toughest job as caregivers out here. It's hard when the person you're caring for just feels tired - even the question of "what can I make you for lunch" isn't well received. It's just an overwhelming feeling of fatigue. I know this is only temporary. I am determined to march on -thanks to all of you - my family and friends who have provided SO much support through prayers, words and cards. All of your love is strengthening me. It is God's love working through you. I have never felt afraid or alone. Words are insufficient at expressing my gratitude!

Thank you for your continued love and support!
Bridget

Sunday, May 17, 2009

Another Week Down!









It's hard to express how much love and support I've received. I thank each and every one of you for your continued prayers!


My dear friend, Jaclyn Carey arrived after Mother's Day and stayed for the week. What a week...it just seemed that each day was unpredictable as far as energy. I guess I can say that the Drs. were right - the chemo and radiation can really wipe you out. Of course, I didn't think it would happen to me, but Jaclyn helped pull me through each and every day...from cottage repairs to reminding me to breath!

She also helped keep my spirits up by reading inspirational prayers and books. We had a wonderful time together. Thank you Jaclyn, words are inadequate to express my appreciation.

Of course with the lower energy levels together with some computer issues, I have not kept up the blog as much as I would like. Please keep up your prayers and note that the settings have been changed on the lbog so anyone should be able to post a comment without necessarily being a "member"...so your comments are always welcome. My address is also listed in a previous blog.

My energy may be lower but my faith is strong! My sister Susie is here, sister Peggy is coming this weekend and brining our youngest daughter Gretchen. I cannot wait to see her! Our other two kids, Ben and Adelyn are a bit too wrapped up with finishing school on a strong note but I'll see them in a few weeks.

The picture of the tasty treats is of frozen yogurt from the famous Pinkberry...California's trendy, yummy yogurt establishment. The flavor on the left is pomegranate green tea with fruit and vanilla with chocolate on the right. Mission accomplished Jaclyn!

Thank you again everyone!

Greatfully yours,

Bridget